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T-Space at The University of Toronto Libraries >
Journal of Medical Internet Research >
Volume 3 (2001) >

Please use this identifier to cite or link to this item: http://hdl.handle.net/1807/4628

Title: A Java-based Electronic Healthcare Record Software for Beta-thalassaemia
Authors: Deftereos, S
Lambrinoudakis, C
Andriopoulos, P
Farmakis, D
Aessopos, A
Keywords: Original Paper
Medical records systems, computerized
computerized medical record
delivery of health care
automatic data processing
Issue Date: 26-Dec-2001
Publisher: Gunther Eysenbach; Centre for Global eHealth Innovation, Toronto, Canada
Citation: S Deftereos, C Lambrinoudakis, P Andriopoulos, D Farmakis, A Aessopos. A Java-based Electronic Healthcare Record Software for Beta-thalassaemia. J Med Internet Res 2001;3(4):e33 <URL: http://www.jmir.org/2001/4/e33/>
Abstract: [This item is a preserved copy and is not necessarily the most recent version. To view the current item, visit http://www.jmir.org/2001/4/e33/ ] Background: Beta-thalassaemia is a hereditary disease, the prevalence of which is high in persons of Mediterranean, African, and Southeast Asian ancestry. In Greece it constitutes an important public health problem. Beta-thalassaemia necessitates continuous and complicated health care procedures such as daily chelation; biweekly transfusions; and periodic cardiology, endocrinology, and hepatology evaluations. Typically, different care items are offered in different, often-distant, health care units, which leads to increased patient mobility. This is especially true in rural areas. Medical records of patients suffering from beta-thalassaemia are inevitably complex and grow in size very fast. They are currently paper-based, scattered over all units involved in the care process. This hinders communication of information between health care professionals and makes processing of the medical records difficult, thus impeding medical research. Objective: Our objective is to provide an electronic means for recording, communicating, and processing all data produced in the context of the care process of patients suffering from beta-thalassaemia. Methods: We have developed - and we present in this paper - Java-based Electronic Healthcare Record (EHCR) software, called JAnaemia. JAnaemia is a general-purpose EHCR application, which can be customized for use in all medical specialties. Customization for beta-thalassaemia has been performed in collaboration with 4 Greek hospitals. To be capable of coping with patient record diversity, JAnaemia has been based on the EHCR architecture proposed in the ENV 13606:1999 standard, published by the CEN/TC251 committee. Compliance with the CEN architecture also ensures that several additional requirements are fulfilled in relation to clinical comprehensiveness; to record sharing and communication; and to ethical, medico-legal, and computational issues. Special care has been taken to provide a user-friendly, form-based interface for data entry and processing. Results: The experience gained through the use of JAnaemia in 4 Greek hospitals reveals a significant contribution towards (1) improvement of the quality of the data being recorded, since data entry is guided by appropriate forms, (2) easier cooperation between physicians, who share a common information repository, and (3) increased processing capabilities, which facilitate medical research. Conclusions: JAnaemia appears to be a useful tool, which can improve the quality of care offered to beta-thalassaemic patients in Greece.
Description: Reviewer: Starren, Justin
URI: http://hdl.handle.net/1807/4628
ISSN: 1438-8871
Other Identifiers: doi:10.2196/jmir.3.4.e33
Rights: Copyright (cc) Retained by author(s) under a Creative Commons License: http://creativecommons.org/licenses/by/2.0/
Appears in Collections:Volume 3 (2001)

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